ACT Study Research Data

We are providing this chart for potential researchers who may want to use anonymized data from the ACT Study to conduct their research projects. Since the ACT Study’s inception in 2001 until it moved to the University of Florida in 2019, there have been a total of seven questionnaires that have asked different questions of interest to researchers in the Alpha-1 community. The headings across the top of the chart reflect the main focus points of each questionnaire. Please contact MUSC for further information at or 877-886-2383.
Act research