Genetics Program

About the Alpha-1 Genetic Counseling Program

The Alpha-1 Foundation Genetic Counseling Program provides telephone-based free and confidential genetic counseling for individuals considering being tested for, or diagnosed with, Alpha-1 Antitrypsin Deficiency (Alpha-1). The program also provides information and resources for parents, family members and medical professionals.

The Genetic Counseling Program is available to provide support and guidance to help you understand Alpha-1 and what it means for you and your family. Other questions she may help you answer:

  • Should you be tested for Alpha-1?
  • How should you tell your family members about Alpha-1 and their own risks?
  • What does a diagnosis of Alpha-1 mean?
  • Where can you get treatment and support?

To contact the Genetic Counseling Program based at the Alpha-1 Foundation, please call 1-877-228-7321 ext. 326.

See Alpha-1 Genetic Counseling Brochures for additional information:
Patient Brochure Healthcare Professional Brochure

The Alpha-1 Foundation Genetic Counseling Program provides information about genetic testing for Alpha-1 Antitrypsin Deficiency, and how genetic testing may affect you and your family. The privacy of all callers is protected to the extent permitted by law. Information will not be shared with physicians or any other organizations unless authorized by the caller.